A lot of things happened today. Today is the first day free of tubes for quite some time. The hated NG tube is gone!! His picc line was removed yesterday. He takes all his medications by mouth now. He is still on pureed diet, but he is cheating! He also is not choking, even though he is cheating. See latest pictures added tonight; who yelled at him? A friend gave me a bag of cookies today and I ate one and he ate about 7. He states he needs the calories.
He seems much stronger to me. His legs have a "strange" feeling and they are making him miserable. His half smile is back full force tonight. His expressions are easier to read, but his voice is more expressive now and this helps. When only half his lips move and the other doesn't his words sound funny, even he thinks it is funny sometimes.
PT, OT, and speech continue to work with him a couple of times a day. They tried the nerve stimulation (for the swallowing) when he ate breakfast be he is so hairy that it didn't work very well. He is going to try the stimulation with his lower extremities. They marked spots on his legs that he had to trim tonight. Hopefully it will be able to work there, it is not near as gruff as that facial/neckline stubble.
Vance spent the afternoon with him, they went for a stroll through the hospital after his therapies. Hannah and Kyle visited late afternoon. Dad and Mom spent the evening and mom staying the night.
He will have therapies all day tomorrow but Sunday's on rehab are rest days. He is trying to come up with something fun to do while stuck here, any ideas for him?
much love,
denah
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