Today was a busy successful day. I left for work at 7 and dad was on duty for the morning. Grandpa and Grandma Banta were on duty this afternoon/evening. He had visits from Cathy and Diana tonight too. I got back from work at 8 and he was up in the chair and watching Hulu.
Swallowing study this morning still shows a lot of dysfunction and speech worked with him for techniques while eating. He can still have a pureed diet but he has to take small bites, turn head to right and down to chest, swallow, follow with liquids, and dry swallow a couple of times and then cough before the next small bite. Eating is a challenge and time consuming but a welcome event. He ate three meals today! He still has tube feedings at night but he is so hoping to get rid of "the tube" soon. He hates it.
He also worked with PT and OT in the AM and again in the afternoon. They let him have a break in between and he gets to rest. PT has him exercising his unused muscles and trying to just stand. he can not do this on his own and only for less than a minute with help for now. OT is working on upper body exercises and learning to maneuver from lying to sitting which he can not do on his own, but he is learning to help those helping him. OT also works with showering and shaving and teeth brushing, you know those things we take for granted that we can do every day without having to will our muscle/limb/digit to work enough to complete the task.
He does not like his rehab bed. He has had the top of the line beds on the 5th floor and at IU but this bed just isn't near as nice/comfy. I think they do that to remind those in rehab that they are there to be up rehab-ing and not lying in bed napping? Just a theory of mine.
He wants to be home by Christmas but I do not think they are thinking that will happen. We just have to wait to see when those myelin sheaths start repairing and things start communicating. I see some communication going on. I think his arms are moving better (but not the fingers so much). His right side of his face every once in awhile has a bit of expression to it, like a turned up smile when he is laughing. I wanted to put a picture of this on here but he is being picture unfriendly the past couple of days, someone should yell at him about this.
Well it has been a long busy day, we are going to get into our PJs and watch a new series he found on hulu: Dexter.
Will let you know how things go tomorrow.
love,
denah
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